Reclaim the day

On World Duchenne Awareness Day (WDAD), Friday, September 7, Stand for Duchenne Canada is happy to announce the Reclaim the Day initiative, to help raise awareness of Duchenne Muscular Dystrophy (DMD).

Many Duchenne families will never forget the day their children were diagnosed. The feeling of shock, panic, and helplessness is only a fraction of the emotions that we all experienced that day.  We want to “Reclaim the Day” and remind families and our communities how fortunate we are to have such special children in our lives. We also want to give a day back to our kids that is not about Duchenne but about them and what makes them so special.

How this will work: Stand for Duchenne will select a Duchenne child and invite them to “Reclaim the Day”. This will be a community event that will take place in their hometown that will celebrate a joyful activity of their choice. This could include events like a concert featuring your own band, an art exhibit featuring your work as a photographer or artist or even a video gaming party.

We’re calling all interested Duchenne families in Canada to submit a 350-word (maximum) essay describing their day of diagnosis and how they would like to reclaim their day.  Please submit your entry by Sunday, October 7, 2018, at 9:00 PM EST.  Click here to submit.

The chosen submission will most effectively demonstrate how their chosen activity will “Reclaim the Day”, giving them strength, hope and resilience, ultimately reframing their day of diagnosis. Stand for Duchenne will help plan a full day around your activity and the things you love and a few special surprises, to make it full of happiness and joy to help you reclaim the day.

If you have any questions, please do not hesitate to email DMDadvocacy@cohnwolfe.ca or Alyssa Acorn (alyssa.acorn@cohnwolfe.ca or 647-259-3304).