Working to unite families living with Duchenne to strengthen lives through advocacy and support

Stand for Duchenne Canada aims to serve as a resource for all Canadians living with Duchenne muscular dystrophy and their families.

We’re here to connect those impacted by this disease, build understanding and awareness and advocate on behalf of patients and families to ensure they have the best possible care and treatment.

Your engagement in advocacy can make a significant difference in achieving this goal and, when the time comes, we won’t be able to succeed without you!

Help us increase public and government awareness of this disease and the issues facing boys with Duchenne and their families by telling your story.

To learn more about advocacy or becoming an advocate for Duchenne, contact us at

Please check back frequently to find out more about advocacy as we build out this section of our website.