Advocacy

Working to unite families living with Duchenne to strengthen lives through advocacy and support

Stand for Duchenne Canada aims to serve as a resource for all Canadians living with Duchenne muscular dystrophy and their families.

We’re here to connect those impacted by this disease, build understanding and awareness and advocate on behalf of patients and families to ensure they have the best possible care and treatment.

Your engagement in advocacy can make a significant difference in achieving this goal and, when the time comes, we won’t be able to succeed without you!

Help us increase public and government awareness of this disease and the issues facing boys with Duchenne and their families by telling your story.

Webinar Replay – Understanding How Drugs are Approved and Funded in Canada

In this webinar, we will start from the beginning with an informative session explaining Canada’s drug regulatory and reimbursement processes.  If you have questions about how medicines are approved and funded in Canada, this is the webinar for you!

Click here to watch the webinar replay

To learn more about advocacy or becoming an advocate for Duchenne, contact us

Advocacy Workshop: Tools for the Duchenne Community

On October 13, 2017, Stand for Duchenne Canada hosted its first advocacy workshop to introduce the Duchenne community to how and when to engage in advocacy. This knowledge is
essential to give families the tools to raise awareness about Duchenne muscular dystrophy and the needs of the community.

  • If you weren’t able to join our session in person and want to learn about the importance of advocacy and effective strategies, you can view the presentation from our workshop here.

  • Connecting with key government decision makers directly to educate them about the community’s needs is important to do, but requires preparation. Learn how to advocate in person to your elected officials here.

  • Sharing your story with the media is also an effective way to educate government and the broader public about the challenges of living with Duchenne. Learn why and how by reading our workshop presentation here

To learn more about advocacy or becoming an advocate for Duchenne, contact us at info@duchennecanada.org.

Please check back frequently to find out more about advocacy as we build out this section of our website.