Nicola & Ed Worsfold
Nicola and Ed live in Toronto and are the founders of Stand for Duchenne Canada, and parents to 7-year-old Emma and 9-year-old Owen, who was diagnosed with Duchenne muscular dystrophy in 2013.
Nicola is the chair of Stand for Duchenne Canada. Nicola is a medical manager for a large biotech/pharmaceutical company with extensive experience in biologics and clinical trials. Ed is a senior marketing professional with over 15 years of experience working with technology and software companies.
Jon is President of Compass Regulatory Inc., a consulting company specializing in helping small biotech companies plan and execute clinical development of their lead compounds. Jon has over 20 years of experience working in biologic and small molecule drug development for both large and small pharmaceutical companies.
Jon, his wife Gillian, and their daughter Esme live in Toronto. Jon first met Ed in high school, and they have been close friends ever since. Jon hopes to combine his experience with Nicola’s expertise to help Duchenne boys and their families navigate the evolving treatment landscape.
Angie is a senior human resources professional, with over 20 years of experience in mid to large sized organizations. During her day-to-day, she specializes in strategic planning, change management, employee experience and organizational integrations.
Angie and her husband Phil live in Toronto and have two children, Annabelle and Ian and together have been lifelong friends with the Worsfold family. Angie is close to seeing how Duchenne muscular dystrophy has affected not only Owen, but the family as a whole. Angie is passionate about advocating for the DMD community to get access to support and one day, a cure.
Alice is a senior marketing professional with over 18 years shaping Marketing strategy for three of Canada’s top brands and has delivered innovative marketing campaigns and advertising platforms for a wide variety of products and services in financial, telcom and publishing.
Alice and her husband John live in Toronto with their three children – Connor, Quinn and Charlie – and have been friends with the Worsfolds since 2007 when Nicola and Alice met over a coffee with their infant boys, Connor and Owen, who have been best friends since, and who share a special bond. Alice has been touched and inspired by the strength of the Worsfold family through their diagnosis of DMD and their swift action in advocating for Owen, and now for the DMD community.