Resources

Looking for more information?

The links below will direct you to Canadian and international rare disease organizations and resources, including some that focus specifically on Duchenne muscular dystrophy.

Action Duchenne
Canadian Association for Rare Diseases
Canadian Neuromuscular Disease Registry
Canadian Organization for Rare Disorders (CORD)
Canadian Pediatric Neuromuscular Group
Cure Duchenne
Decode Duchenne
Duchenne Connect
Duchenne Foundation Australia
Duchenne UK
Fondation La Force
Jesse’s Journey
Max’s Big Ride
Muscular Dystrophy Canada
Muscular Dystrophy Association USA
Orphanet
Parent Project Muscular Dystrophy (PPMD)
The Society for Muscular Dystrophy Information International
TREAT-NMD