Mission and vision

Stand for Duchenne Canada is a not-for-profit, non-charitable organization founded by a small group of individuals whose lives have been touched by Duchenne muscular dystrophy. We were born out of the need identified by our founders, Nicola and Ed Worsfold, for a group dedicated to supporting families like theirs – especially at the beginning of their journey when their son was diagnosed with Duchenne.

As a national, voluntary organization, Stand for Duchenne Canada’s mission is to unite families living with Duchenne to strengthen their lives through advocacy and support.

Stand for Duchenne Canada is dedicated to:

  • Connecting those affected by Duchenne to establish a united community across Canada
  • Building understanding and awareness about Duchenne muscular dystrophy
  • Advocating for access to the best available care and treatment for those living with Duchenne

We invite you to share our vision of a strong and long life for Canadians affected by Duchenne muscular dystrophy.

Join us and let’s stand strong together in the fight against Duchenne!