Stand for Duchenne Canada is a not-for-profit, non-charitable organization founded by a small group of individuals whose lives have been touched by Duchenne muscular dystrophy. We were born out of the need identified by our founders, Nicola and Ed Worsfold, for a group dedicated to supporting families like theirs – especially at the beginning of their journey when their son was diagnosed with Duchenne.
As a national, voluntary organization, Stand for Duchenne Canada’s mission is to unite families living with Duchenne to strengthen their lives through advocacy and support.
Stand for Duchenne Canada is dedicated to:
- Connecting those affected by Duchenne to establish a united community across Canada
- Building understanding and awareness about Duchenne muscular dystrophy
- Advocating for access to the best available care and treatment for those living with Duchenne
We invite you to share our vision of a strong and long life for Canadians affected by Duchenne muscular dystrophy.
Join us and let’s stand strong together in the fight against Duchenne!